Sorry, I have not been on to update, but I have been doing the Round Robin Sick Kid Game, ugh.
Yesterday, I was off to NYC again to my hospital. The RN's in the Infusion Therapy Room (who used to give me the Remicade) took my blood and put in my IV, each on the first stick! Yay!
Then, I went to a private exam room with Peggy, the RN who runs the study. I had no allergic or IV infusion related reaction! Yay, again!
Unfortunately, I found out that I probably won't feel any effects of the new medicine until after my February IV infusion.
Prayers and positive thoughts welcome that it will begin to help at some point! It not working for me at all, is a possibility and that would, in plain english, really suck.
The waiting stinks because I am getting more sore as each day passes. My hands are swollen like two baseball mitts, my left elbow is painful, and doesn't want to work properly, and my ankles and feet are hurting more and more.
But...alas, it is the holiday season, and there is no rest for the weary. Particularly for this mom with 2 sick kids who are cutting into my shopping time!! LOL Gotta laugh, otherwise, I cry.
I have actually been doing a fair share of crying lately. Dealing with the constant aches and pains, especially now as my joints are getting worse, drains me, and I get really sensitive, and can start crying at the drop of a hat by the evening.
It isn't pretty, poor hubby and kids.
Time to go... I will try to get back here sooner than later...