Thank goodness, my mom took off from work on Wednesday. I had my monthly Remicade infusion at the hospital in NYC, and it was set for 9am, which means we leave about 7am and pray for good traffic.
My mom had to get Pumpkin to school and then bring Fuzzy into the school to the office as it was his first day back since his arm injury. I had already set up all the assistance with the guidance counselor via phone and email. Gotta love the ease of computers.
Traffic has been real wacky around here for the last two weeks, it is cyclical sometimes, you can go weeks where everything is just smooth as can be and then weeks where every day is a new mess.
Wednesday continued with the messy traffic theme. We got to my appointment with just minutes to spare.
Drawing my blood went smooth and so did the IV line insertion, always a good way to start! I got all my pre-medication by mouth and my pre-med steriod IV bag to avoid a reaction. Then the Remicade itself was up!
All was good through the first 300 mls and the increasing speed of infusion. About 3 minute after the last infusion increase, the chest tightness began. I whispered it to Hubby so he knew, but I didn't tell the RN's right away. I wanted to see if stayed slight so maybe I could get all the infusion.
I know this sounds nuts, but the stuff works!! My infusion was a week later this month and I was already starting to have more swelling and discomfort in my joints.
After a bit, and with 61 mls left, I had to tell the RN's. They were not happy with me that the feeling started 15 minutes early. In fact, I think one of them would have spanked me if she could have done so. They stopped the medicine, began to pump me full of saline, did and ekg (normal) and called my rheumatologist.
An hour later, my rheumatologist checked me out, pronounced me okay to leave once my saline bag was done, and told me to call her to discuss my options. They are familiar with this reaction, it starts this way, as chest tightness, then ends up in respiratory distress, anaphylaxis or heart attack.
So, yeah, looks like I need to pick a new med to try. Very frustrating, as Remicade worked!!!! Still not sure what the new course of action will be. I was very tired yesterday after the ordeal as you can imagine. Even today, I pretty much just slept in and relaxed.
Tomorrow, I should start to feel better, pretty good even. After all, I did get most of the medicine in me! LOL
Okay... I am behaving, really.
So, there you have it! Several days jumped up and attacked me all at once! Emotionally, psychologically, physically - everything has been tested and retested.
Sadness over the bird, worried for my son, medical reactions...yes, it has been a wild ride.
I hope you will forgive me being so behind in journals....I will get caught up, if the days will stop attacking me!!!!