Hello J-land!
Tracey from over at one*hip*mama wants me to let everyone know that she is away for a while with her new honey and is doing just fine.
She also found this article looking for people interested in trying a new drug being tested for Lupus. This drug, rituxan, has already been approved for Rheumatoid Arthritis.
Check out the article here: Research - Lupus Foundation of America, Inc.
Moving on to my crazy world, it is that time again!
Time to go to NYC for my Orencia IV. Yay! I need it. I can tell that it is time because for the last few days my hands have been more sore than they are during the rest of the month.
Things have been very hectic here! This weekend I was host for my book club! I did a brunch on Sunday, so hubby could take the kids out for breakfast and bowling. I did muffins and bagels from Dunkin Donuts, regular and french vanilla coffee, and a mimosa punch with raspberries. Oh yeah, and fruit salad.
I was so nervous, but everyone was very complimentary! 13 out of the 16 members showed. Not bad! I am lucky that my house has a nice sized living room that can fit lots of chairs for everyone.
My mom helped me get the house really clean and together on Friday and I vacuumed and re-cleaned on Saturday evening and Sunday am. I was really bushed afterward, but it turned out to be a really enjoyable afternoon.
Tomorrow, is NYC for my Orencia IV and a checkup with my rheumatologist. Tomorrow night, my hubby and the boys are going to a NJ Devils Hockey game, sponsored bythe Boy Scouts! They are very excited about it!
The funny thing is that for Christmas, my gift to my hubby was a family hockey game outing that happens to be this Saturday with the NJ Devils. LOL
Good thing the men really like going to hockey games!
AND, I am still fighting the fatigue beast. I just wish that it would resolve. I am still very hopeful that it will. I am probably struggling a bit because I am reducing my prednisone, too. I am determined to be off it within the next few weeks, and as many of you out there know, once you are on it, your body rebels at trying to take it away.
I am determined though, and will do it, even though I will flare and suffer for while longer with the fatigue. In the end, I will have done my body a huge favor.
Please keep me in your prayers.... I can always use them.
Be well,
Dawn
9 comments:
taper slowly on the prednisone and be careful with it Dawn
betty
Good luck on reducing your prednisione. I know you know how to do it. I am now prednisione free. But I have to say that when I am taking my AM meds I am so tempted to start it again. It's there in my med bucket. There is definitely a difference in the way I feel. But there was too many other bad things that went along with me taking it. Hugs, Lu
((((Dawn))))))
you go Dawn! WE ned yuo so you need the energy! :):) hugs we love you so much! you are in our thoughts and prayers
nat
Big ol freakin' hugs to you...hugs upon hugs. Capn' has been on Prednisone before...tough stuff. Could you be "needing" "something" "Else"??? WINKWINK...you know...bein' 40 and all... LOL ;) C. http://journals.aol.com/gdireneoe/thedailies
Thanks for the update on Tracey!
It sounds like your book club get together was a success.
I am happy for you that you were able to do that and I am praying that your IV will give you the boost you need.
:)
Love,
Loretta
Dawn, you should call me while in NY !! Where do you go for the treatment? Your book club get together sounded great.
Hope you are feeling better when your back.
Ellen
Mimosas!!! YUMMY!!! Good Luck at the dr.'s. Lelly
Prayers are on the way, Dawn! I hope that you are doing well, and that everything goes ok in New York City!
Congrats on the book club experience! I know how tense those fun situations can really be!
Charley
http://journals.aol.com/CDittric77/Courage
sending you prayers and happy thoughts
Marti
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