Thursday, April 14, 2005

Baseball Yay! Health Nay...

DS10 baseball game was wonderful!  He had a single and an RBI, ( batted in a run), and his next up he got hit by a pitch.  He wasn't hurt, thank goodness, but he and his team scored a bunch that inning and they won 8-0.  YAY!

On to me...things are still painful with my jaw, although not as much.  I can eat now, but it is just generally a bit sore on the left side.  I could really do without this added nuisance.

I had my Remicade infusion yesterday.  It wipes me out for about 24-36 hours after, which is normal. 

I had the infusion director who is very thorough and went over everything going on with me of late and kind of confirmed a fear of mine.  I have been having this pain in my right leg muscles.  First the lower calf, then the hamstring and quads.  The pain is not constant, but the pain itself is always the same.  I have also had some of the same pain in my biceps accompanied by weakness.  I was thinking myositis, but didn't want to think it, and Linda, the RN and director, said the same.  She wants me checked by my rheumy before my next infusion.  Probably, they will confirm myositis, linked to the RA she believes, and may add steriods, which I have been trying avoid.  I don't know what to think or feel about that.

She also is concerned that it could be a sign that my lupus is becoming active again.  UGH.  I guess what will be, will be.  I am under good care.  I still want to try and avoid the steroids, but I want to be able to use my arms without worrying about dropping stuff.

Pray for me, I will be praying for you...



1 comment:

melisfrn2 said...

Way to go Alex!!!  Woo Hoo!  So glad he didn't get hurt, baseball can be scary at this age.

I do hope you're not heading into a flareup dear, definitely praying for you!  Try to take it easy and get some rest, you seem to have such a busy schedule, I really don't know how you do it!  

Sending healing loving vibes your way dear!

love, (((((gentle hugs)))), and prayers