Thursday, April 7, 2005

What's it like to have Unlimited Spoons?

Okay, you all know the "spoons" story.  If not, here is the link. Spoons

A quick definition before I continue...

"well" = no chronic illness, ie; lupus, RA, etc.

So, I wonder, what must it be like to be "well" and to never have to worry about spoons - to have a virtually, unlimited supply?

Because here is the thing...I have suffered for the last 2 days just for cleaning our playroom!  Now, I know I asked for it.  I knew what was going to happen going into the whole thing.  Yesterday, I could barely move, slept on and off all day, and when I was awake, I was cranky and sore.

Today is better.  Not perfect but better.  In the days before Remicade, I would still be sleeping all day and probably would pay for it for a week, so believe me, I am grateful for small favors.

All you people out there who are "well" and read this rant, stop for a second and thank God for how blessed and lucky you are to not be chronically ill and in pain.  Every moment of my day is touched by my illness.  And I know, you cannot even fathom that.  So, again, thank your lucky stars.

That is not to say that I am not blessed.  I am.  I have 3 marvelous children that I have the honor of raising.  I have a hubby who loves me and tries his best to be everything I need.  I have 2 healthy parents that I have the privilege of living with in a mother/daughter style house that I see everyday, and help me in innumerable ways.  I have 3 pets that give me such joy.  I have wonderful friends, and a fabulous online community that truly keep me sane.

I am lucky, I am blessed.  I just don't have enough damn Spoons!!!

Peace, love and hugs, Dawn



butterflygherl said...

I would love to have unlimited spoons too, Dawn! It must be nice to know you can do whatever you want, whenever you want because we lupies sure can't! I keep telling my DH that if I had the energy and ability that he does, I'd take over the world! He is one of those non-stop type people, and I'm doing good to be up for 10 or 12 hours.

I hope you are feeling good today!


melisfrn2 said...


I wish I could give ya some more spoons, hon, you need them with three children!!  Just remember, there ARE days when we have extras, and we can at least enjoy those days, the days when we CAN do more, and have fun give us some good memories for the days when we fall short on supplies!

Chin up sweetie!  You're doing the best you can, and it sounds like you're doing a wonderful job raising your children!

love, (((((hugs)))) and prayers

buckeyebabee71 said...

i just read this entry and it brought tears to my eyes, cuz i know exactly what u r talking about.  if i do anything out of the ordinary, like just cleaning my, i completely pay for it with fatigue for about a week.  i guess reading your words just made me feel a little saner for some reason.  now i gotta go wipe the tears away.
thanks :-)