After the Hubby, the kids and the rest of my family... not much else I love more!!! lol
Sweet nectar of the gods, blessed libation of genius natives who crushed the beans and boiled it in water!
As you know, I have Rheumatoid Arthritis and Lupus.
I have written before about the different symptoms, and how fatigue is really the worst one, in many ways.
A quick review...
Tired = You go to rest and sleep and wake up refreshed.
Fatigue = You go to rest and sleep and still feel like you are trudging through life in a world of pea soup, with 100 pounds of potatoes on your back.
The new drug that I am on, Orencia, that I get by IV once a month in NYC at the Hospital for Special Surgery (see link in my side bar), is doing a great job on my other symptoms.
In the last two months, I even feel the fatigue is starting to lessen, but it is still hard to deal with.
My rheumatologist has offered me a drug that would give me about 12 hours worth of pep. I have declined it. I already have an IV drug once a month, 4 medicines every day, and one occasional med that I take, I really don't want another one.
Besides, I already have one that works fairly well.
From spring until fall turns cold, I am addicted to Dunkin Donuts Iced Coffee. Large. I have found out that if you keep them in your fridge for up to four days, they stay fresh and the ice even stays unmelted!!!
So, that is what I do! I get 4 large DD iced coffees with cream and have one a day. I still often have a hot mug when I first get up of my homemade Maxwell House, but, then I drink my DD Iced.
Sometimes, I drink two on particularly trying days, when I need a real boost.
Now, if you were my husband... wouldn't you just be happy that your wife, who is home with your three kids for the summer, has found this non medical way to cope with one of the symptoms of her disease?
Never mind the fact that I am not 100% pain free on any given day and I suck that up.
Oh no, my hubby has to be begged and prodded to 'PLEASE, go pick up my coffees!' He throws little baby temper tantrums and hissy fits, when I remind him that I am out. Even though, let him know early enough in the day that he can work the stop in himself when he chooses.
Why don't I pick them up myself?
A) I usually don't have the $ to do so, on me, yet he does.
B) I am usually exhausted by the evening after dinner time from juggling the kids all day, and driving and carrying the coffees are the last thing I want to do.
Yes, I know my hubby is tired also, but he isn't coping with a chronic disease.
And, I think I am doing a pretty good job of that on most days!
I keep praying that one day, the eye rolling little temper tantrums will stop and he will just say, 'Okay, hon.' and he will go get them.
Maybe, now that I have shared this all with you, and he will get to read it AND your comments....he will start to do so.
Bwaaa ha ha ha.... My evil plan has been launched.... Wish me luck!
ps... The kids are loud and at each others throats again...everything is back to normal! Hooray!