Thursday, July 20, 2006

An Update and a Thank You!

Thank you, everyone, for all your support with my Hubby and the coffee dilemma! 

I am happy to report that I am sipping a wonderful Dunkin Donuts Iced Coffee, purchased last night in a set of four, as I type this.

We talked it all out and I think now Hubby understands that this little thing, although it can be an inconvenience, goes a long way toward helping me cope with my busy days!

Yesterday, I had my last Orencia treatment as part of a study.  I will continue on the drug, by IV each month, but now my insurance will pay for it.

Although nothing will change, I am a little sad.  I will still go to the same Infusion Center as I always have like when I was on Remicade.  I will still get to see all the wonderful RN's that cared for me there, that put in my IV's and do my blood, but I will not see, Peggy, the study RN anymore.

It was nice having Peggy there.  I know it was her job to supervise my care, but she is such a great person and went way above and beyond doing 'just a job', by getting to know me and letting Hubby and I get to know her.

I will email her occasionally, and she promised to stop in and visit when she can when I am getting my IV.

My finger is still sore and acting strangely.  It is 'triggering' for those who know what that is, and for those that don't it is when your joint sticks and then pops.  That isn't so bad, a few of my fingers do that, but occasionally it feels like the tendon gets pinched and that makes me jump through the roof for a second, and then it releases.  UGH.

Anyhow, we have had some wacky thunderstorms here too, and there are lots of people without power, and trees and branches down everywhere. 

Wewere lucky, just small branches and a five minute power outage.  Phew!

Pumpkin's friend is late for the play date, and she is about to cry, so I have to go deal with this for a while!

Hope you are having a good day in your neck of the woods!

be well,
Dawn

 

15 comments:

Anonymous said...

glad you have your coffee its a wonderful thing:) it is hot here they say maybe a rain shower this afternoon we shall see

Deb

Anonymous said...

Maybe that rain will relieve the hot weather you guys are having. Just hope that the storm off the coast beings some cool breezes. Sandi

Anonymous said...

glad the coffee thing got worked out, Dawn. Poor Pumpkin; I remember those days of Matt pacing around waiting for a friend to come over; hope she's having a fun time playing by now :)

enjoy your afternoon!

betty

Anonymous said...

LOL...I knew the coffee deal would work out.  My mother get Remicade IV's for her Chron's disease.  It is funny how you get so close to your caregivers.  My mom is always sad also when she has to switch.  HUGS  Chris

Anonymous said...

Dear Dawn,
I'm sooo glad that you and hubby worked out the coffee dilemma.
Wow that storm  must ahve taken a lot out of the heat there! awesome!

Im so sorry that yuo dont get to seee Peggy anymore..that is the part of life that I think sucks bad!
I hope that your finger gets better very soon!
love and hugs,natlaie

Anonymous said...

im glad your insurance covers it now it should of been doing that!

Anonymous said...

I'm glad that he understands about the coffee. Sometimes it takes hubby's alittle bit to understand.
It's hard to find nurses who will go above and beyond. I'm glad that you had Peggy for alittle while and I hope you can find another nurse like her.
Hang in there and prayers!
Gretchen
http://journals.aol.com/ksgal3133/LivinginSavannah2

Anonymous said...

So glad you got your coffee.  It's raining here, too.
Lori

Anonymous said...

Dany use to fuss sometimes about doing certain things for me and like you, we talked about it and I just asked him what it was that he did not like about doing it? When we talked it over, we discovered that he had just gotten into a habbit of fussing about it! lol I knew that he would do these things for me, but I hated having to go through the fussing part first! lol So I stopped asking him to do them, he quit fussing and started doing them for me willingly! lol I look back on these times now and they seem so funny!
Take care,
Carlene

Anonymous said...

Woes is the person that stands in the way of a girl and her coffee. Glad to see that the DH saw it our way! LoL 1 more for the girl team. Hope Pumpkin's play date shows up. And goodie, goodie on the insurance paying.

Brenda

Anonymous said...

Glad hubby picked up the coffee....just tell him to remember , in good times and in bad, in sickness and in health!!!!
hugs to you !
Ellen

Anonymous said...

The power here has been off-and-on for two hours at a time for the entire week here "out in the sticks!" Most of my time has been spent runnin' the generator, and dodgin' hourly pop-up t-storms! Ain't life grand sometimes?! And by the way, a generator manifold, at full runnin' temp, makes a GRAND cup of instant coffee!

Anonymous said...

Hooray for DD coffee, iced or hot! I have the popping in my knee like you describe for your finger. Although it doesn't actually hurt it is a very strange sensation. Have a good weekend. My Regards, Bill.

Anonymous said...

My husband's thumb does that and he says it hurts.

marti

Anonymous said...

I hope you feel better and I am very sorry to hear you still have to go to the infusion center. I hope that will change for you one day.
Thank you for the clarification. I've always thought a trigger finger meant you wanted to shoot someone!!!!!!
Dianna < < < Dummy