Hello my dear J-Land friends!
I just wanted to take a moment to thank everyone leaving comments in my journal, and particularly on yesterdays entry, Double XX Syndrome!
I noticed that I have quite a few new readers and I am so happy about that, I will come to visit your journals soon!
Today, I was at the hospital in NYC for my Remicade. For those who aren't familiar with it, Remicade is a medicine for my Rheumatoid Arthritis. The medicine is given via an intravenous infusion. It works by suppressing a specific comenent of my immune system that is involved in the inflammation response of Rheumatoid Arthritis. It has also been proven to slow down and even halt the damage to the joints from the disease, which is very important if I want to continue typing and walking!
Last month, I had the beginnings of a reaction to the medicine. This was my first visit since then and I have a new protocol to receive the medication. They are giving me a double dose of Benedryl, via mouth, and Solumedrol, an IV dose of steroids, dampen any reaction. They also gave me my Remicade very, slowly. All went well, reaction wise. Yay!
My veins are another story. They were particularly persnickety today, and I now have the beginnings of three terrible bruises and my IV arm hurt like crazy. Oh well.
The infusion makes me tired and gives me a bit of headache for about 48 hours, but then after that, I start to feel better and better. It has proven to be the best treatment option for me so far.
I also visited with my rheumatologist before the Remicade and we went over my labs. My lupus still seems to be in a remission, which is very good news. She ordered a new panel of blood tests for this month, doing a few extra. She does the whole kit and kaboodle like this about every 4 months to keep a close watch on everything. Next month, it will go back to just the usual set. LOL
I will be laying low and may not get to visit as many journals as I would like to, or answer comments directly for a day or two, that is why I wanted to post this entry!
So many new journalers have stopped by and I don't want them to think I am ignoring them! Thank you and please, keep coming! You all help me through!