I had my appointment with the MS Specialist this morning.
Well, I wish I could say I have a definite diagnosis or answer, but as usual, no such luck.
It just isn't in the cards for things to be solved simply for me.
And, it isn't that I wanted to be diagnosed with any one thing more than another... I just want answers.
Overall, the MS Center was great. I knew it would be...
The RN was great, the doc was great. The doc doesn't think it is MS, because the MRI is negative. However, since it was the open mri (remember I freaked), she wants to do another MRI, closed, with me knocked out (at my dad's hospital/which is hers), in the end of November the beginning of December. It is possible that MS lesion evidence was missed because open mri's are not good for showing that. I will see the Doc again on December, 17th.
If anything 'new' or 'interesting' happens before then, I am supposed to call.
Doc also said that she wouldn't change much anyway. Methotrexate would be where she would start me. However, if I did have the MS, the center is so awesome, they have everything all together, support groups, therapist, pt, ot, RN/PA's etc. And, there are other treatment drug options, too.
She thinks that it is PNS or CNS Lupus. Not that any of those things are any better. So, that sucks basically.
So, I am frustrated. I just wanted answers.
I do have an appointment with a neurosurgeon, May 14th. Yay. Brain thingy... next on the agenda!
I am going to change to a new rheumy, one that used to be at HSS in NYC, and is now in NJ, it will be easier on me, Hubby and all.
I have decided that changes are in order. :-)
So, that is that... or not that... lol or who know what that is!!! LOL Thank you... I felt your positive thoughts with me as always!
That is enough of that medical crap for a while... I am tired of it, and I know all of you must be also!